top of page

FUNDRAISE FOR FAMILIES

Create a GoFundMe

Have you ever seen a GoFundMe and resonated with a story similar to that of our children? Studies show that donors are more likely to trust GoFundMe fundraisers and people are more likely to share GoFundMe fundraisers on social media. We'd like to encourage all our SPATA Families to create a GoFundMe to highlight their child (or children) to benefit The SPATA Foundation for research.

​

This is a great way to get involved, tell your child's story, and impact the future.

​

If done correctly by following the steps below, donors can still receive a tax benefit.

STEP 1

CLICK HERE to start a GoFundMe campaign.

​

REGARDLESS OF YOUR LOCATION, choose United States for the country and input the zip code 32164. This is because this is where the funds will be withdrawn as you will be fundraising directly to The SPATA Foundation.

​

Note: Only donors in the United States will be eligible for a tax benefit.

_-01.png

STEP 2

Choose Charity. This is the ONLY way for donations to go directly to The SPATA Foundation. You will not have to deal with transferring any funds, and donors in the US can still get a tax benefit IF you choose Charity.

_-02.png

STEP 3

Search by our EIN: 93-3768682 and choose SPATA Foundation Inc.

_-03.png

STEP 4

Confirm SPATA Foundation Inc is chosen and click CONTINUE.

_-04.png

STEP 5

Set your fundraising goal. If 30 families commit to fundraising $10,000 over the next few months, we could most likely fund the first year of Gene Therapy research.

​

You can make your goal as ambitious as you'd like. There is no limit.

​

*turn OFF automated goal setting

_-05.png

STEP 6

Create your account. Make sure you use an email address you check often and write down your login information.

_-06.png

STEP 7

Upload a cover photo. If you're comfortable, I recommend using one that will pull at the heart strings. We want to show people the awful side of SPATA5 and SPATA5L1. Maybe it's your child getting an EEG, in an ambulance, or post-surgery.

​

The more sad, the better. We want people to FEEL and see what our kids go through.

_-07.png

STEP 8

Write your child's story. Make it emotional. Feel free to use this as a template.

_-08.png

STEP 9

Name your fundraiser. I recommend keeping it simple and easy to understand. Some recommendations:

​

Help Fund a Cure for Luca

Help Luca Fight SPATA5L1 Disorder

Support Luca's Journey for a Cure

Fund Research for a Cure for Luca

_-09.png

STEP 10

SHARE. Share anywhere you can. Your personal social media pages, local Facebook groups, email media outlets, send to local known wealthy families, print a flyer with a QR code for local businesses, ask local businesses to share on their social media.

​

You can also host an in-person fundraiser and use your GoFundMe as a way to collect funds via QR codes. Click here for some in-person fundraiser resources.

Screenshot 2025-03-03 at 8.03.44 PM.png

Ready to Fundraise?

CONTACT US

Thanks for submitting!

OUR MISSION

The SPATA Foundation is dedicated to advocating, educating, and driving research for SPATA5 and SPATA5L1 Related Disorders.

  • Facebook
  • Instagram

The SPATA Foundation is a 501(c)(3) Organization.

​

EIN #93-3768682

​

Reports & Financials

©2023 The SPATA Foundation | Privacy Policy

bottom of page