SPATA5 and SPATA5L1 Related Disorders have unfortunately resulted in lives lost too young. We'd like to take the time to honor and remember them. We will continue to fight for a cure in the name of the ones we've lost.

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Has your child passed away from SPATA5 or SPATA5L1? We'd love to honor them. Please click the button below and send us a message. We'd be happy to add your loved one to our memorial page.