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GET INVOLVED

There are many ways you can help The SPATA Foundation with our mission to advocate, educate, and drive research. We've gathered tons of resources for you to be able to do just that!

DONATE

Every dollar means we're one dollar closer to a cure. No donation is too small, every penny is meaningful. 

HOST A FUNDRAISER

Fundraising is a great way to get involved with our mission! There are so many great opportunities for fundraising digitally and in-person!

VOLUNTEER

We know our SPATA Families are filled with people with various skills. If you have a skill you think we could use, and time to donate, please reach out.

RAISE AWARENESS

One of our main goals as The SPATA Foundation is to raise awareness for SPATA5 and SPATA5L1 Related Disorders. The more people who know, the better! 

We've created some materials to help you educate others on these disorders and the mission of The SPATA Foundation.

PARTICIPATE IN RESEARCH

We have researchers dedicated to furthering research on SPATA5 and SPATA5L1, but they need the tools to do the research. That's where our families come in! YOU can play one of the most important roles of The SPATA Foundation but participating in research and helping our researchers.

From taking some time to fill out a medical form, to giving blood and skin samples, there are many ways your data can contribute to research.

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help us find a cure

DONATE TODAY

The SPATA Foundation is on a mission to find a treatment that will enhance the lives of those affected by SPATA5 and SPATA5L1. 

The science exists, but it takes time and money. 

Your donation gets us one step closer.

Mariya  SPATA5
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