2025 SPATA Foundation Family Conference Registration for the 2025 SPATA Foundation Family Conference is now OPEN! We'll be hosting a...

Patient Registry Our international Patient Registry is LIVE through CoRDS . This is an important first step in gathering valuable data...

Hi everyone! I wanted to post some updates for the new year. Yes, I know it’s already February😅 Please forgive me, I got a new job,...

Patient Registry We will be hosting our Patient Registry through CoRDS. CoRDS provides a secure way for participants to share their data...

A Message from Mariah George, Founder & Director Hello SPATA Families! I understand I throw a lot of information out, so I'm going to...

Our goal as The SPATA Foundation is to advance research and keep families informed as we do so. Please direct any questions to...