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Connect with SPATA Families from Around the World! 

There are SPATA5 and SPATA5L1 families all over the world! We even have some patient organizations in other countries as well. Connect with our world-wide community on Facebook and find a local group of families.

North America


Coming Soon


Spain Spata

Please provide your information below and we will send you the invite link. The Facebook group is private, so the link is only active for 48 hours. If you do not join the group within 48 hours of receiving the link, please just email us back and we will send a new one!

Thanks for submitting!

Fritzi  SPATA5
charlie  SPATA5
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