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2025

SPATA Foundation Family Conference

We had an absolutely incredible time at the very first SPATA Foundation Family Conference in Boston! We want to thank everyone who had a role in making it possible and thank all the families who made the trip to attend.

We will be sharing resources below so that others can learn from our experiences as well.

11 Families Represented
11 SPATA Kids Present
53 Total in Attendance

SUMMARY & KEY TAKEAWAYS

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PRESENTATIONS

Mariah George | Welcome, Our Story, History of The SPATA Foundation

Burju Sari, Teacher of the Visually Impaired | Cortical Visual Impairment

Dr. Michael Kruer | Epilepsy & Movement Disorders

Tapas Mukherjee | Postdoctoral Student, University of Toronto Research

Unravel Biosciences | Drug Repurposing Study

Mariah George | Future of The SPATA Foundation

PHOTOS

Have more photos from the conference? Email them to info@spatafoundation.org

SPONSORS

Thank you to our sponsors who made this conference possible!

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THANK YOU TO EVERYONE WHO MADE THIS A SUCCESS

CONTACT US

Thanks for submitting!

OUR MISSION

The SPATA Foundation is dedicated to advocating, educating, and driving research for SPATA5 and SPATA5L1 Related Disorders.

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The SPATA Foundation is a 501(c)(3) Organization.

EIN #93-3768682

Reports & Financials

©2023 The SPATA Foundation | Privacy Policy

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