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join us at the

First SPATA Foundation Family Conference

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Boston, Massachusetts
United States

November 7-9th, 2025

SPATA Foundation Family Conference

We're excited to host the very first SPATA Foundation Family Conference! This conference will be held November 7,8, and 9th in Boston, Massachusetts, USA!

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What's the point of the conference? The primary reason for this conference is to allow SPATA5 and SPATA5L1 families to come together, meet each other, support each other, and learn more about what The SPATA Foundation is doing.

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We are working on an agenda, but we plan to have a time for Mariah George to discuss updates on research projects, Unravel to discuss the drug repurposing project, parent/caregiver sessions, and other educational sessions for challenges we face with SPAT5 and SPATA5L1.

WHERE?

DoubleTree by Hilton, Boston Logan Airport

201 Everett Ave, Chelsea, Massachusetts, 02150, USA

WHEN?

HAVE MORE QUESTIONS?

FINANCIAL ASSISTANCE FOR ATTENDING

We understand that attending the 2025 SPATA Foundation Family Conference may pose a financial challenge for some families, so we've put together some resources for you.

WE CAN'T WAIT TO SEE YOU

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Want to help us fund the Conference?

We've created a fundraiser specifically for the 2025 SPATA Foundation Family Conference if you'd like to donate! You can donate to the general fund, or you can mark donations to go towards the Family Fund to help families attend.

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THANK YOU

sponsors

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Questions & Answers

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CONTACT US

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OUR MISSION

The SPATA Foundation is dedicated to advocating, educating, and driving research for SPATA5 and SPATA5L1 Related Disorders.

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The SPATA Foundation is a 501(c)(3) Organization.

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EIN #93-3768682

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